Looking out of my hospital room, at the green, metal bridge which spanned the Kennebec River, surrounded by the descending crispness of fall, I knew my life was going to be different. Stuck in my new world, I watched as the traffic rumbled over the bridge; my eye drawn to a lone maple tree with the first red leaf of autumn fluttering in the breeze.
I had some time to think.
One thing I saw right off was that I wasn’t going to fit back into my old world. I just knew it. It was clear from the very beginning when my friends from college had come to visit. It was great of them to make the trip, but our short time together showed me how futile trying to put the square peg I had become into the round hole of life was going to be.
I saw that the quality of my life, post-TBI, was up to me, and was in large part dependent on what I did to better myself. I couldn’t count on anyone else. This involved reaching out, taking risks and doing things I never thought I would or could do. I was forced by my situation to take control of my life, and, unable to rely on available resources to “get me better”, I was going to have to serve as my own therapist, psychologist and support group.
Of course, sitting in my hospital bed, I had no idea what the challenges would be. All I could do then was resolve to meet any that came my way.
“You’re On the Air!!”
One of the first decisions I made after I returned to college was to resume the weekly radio show I had at the college radio station. I don’t know what I was thinking.
Well, actually I did know: I thought, “I’m going to make these people listen to me despite the fact that I stumbled, slurred and welded my words together.” As I remember it, my show was pretty much an abomination, but I accomplished what I set to to do, which was make my mark as a person with a brain injury, to show people that, although “different”, I was really no different from anyone else and I was going to live my life with no apologies. I had also resolved to use the world as therapy; in other words, to work on whatever deficits I had by simply “living my life”.
Anyone who didn’t like it would have to lump it.
I spent much of the next year making sure that I didn’t back down from doing or attempting anything, and although I tried not to make a big deal out of the fact I had a brain injury, my actions let people know pretty clearly that I was different.
I had a very difficult time, but, despite the hardships, it helped to know that I was being me, and by that I don’t mean someone with a brain injury, I mean I was the way I was. Doing that, and being that way, was important to me as I discovered who I was again.
What, Me…Fit In?
The next year I decided to go on a semester abroad, something I had been scheduled to do before that car accident got in the way. I decided to go when someone dared me, not the smartest thing to do as I gave no thought to the challenges I would face across the ocean.
I made my mind up that things would be different for me in my program overseas. Whereas virtually everyone at college knew I had been in a car accident and had spent time in a coma, I decided to tell none of my new fellow students anything about my situation.
I didn’t want people looking at me. Whispering. Judging. If they judged me, it was going to be based on who I was at that moment, and not who I had been. This was going to be new start for me, where I would either be accepted or not accepted for who I really was. I needed to see how I fit.
And this was most important: I saw that if I wanted other people to treat me like a normal person I was going to have to treat myself like a normal person. This meant not making excuses. It meant putting myself in social situations where I wasn’t comfortable, and where I was, at times, the subject of comments or butt of jokes.
However, the great thing was none of that bothered me, either because I couldn’t understand what others were trying to get at, or I couldn’t process information fast enough. Nothing said was malicious or hateful, but I cringe now when I think of some of the things said right to my face, and how I didn’t react or stand up for myself.
However, it was the best thing for me. They didn’t know, and I didn’t have a crutch to blame things on.
True Freedom is living your Life with No Excuses
Most importantly, I came out of that experiment with the knowledge that I was who I was. I was no longer the person who had their life turned upside down after experiencing a brain injury. Instead, I was “me”, and it didn’t matter how I became “me”. That car accident was finally in the rear view mirror, and I had put it there because I dared to be who I had become.
TBI Insider says
Very good sir, you are truly a pioneer in our world and I applaud you in that. I have been a “lifer” since my accident in 1994.
Everyday is different but better than the last one and once I accepted that, along with living life labeled as disabled. I have finally come to terms with being that dreaded “D” word in the last couple years,
Being a stay at home parent for the last 13 years has kept me on the straight and narrow while making me force my attention on somebody else while bettering myself in the background. Now we are in middle school and I can force my thoughts back to me during school hours, then back to living a youthful life after the final bell rings..
Fitness rules my life because I have found that having a healthy heart goes along way in having a healthier head.
Life is good in Colorado….
Paul W Giunta Jr says
Jeff, I agree! I AM, today, the person I WANT to be, and I don’t make my brain injury my “excuse”. I LIKE the “new me”, and I’m confident I’ll enjoy the rest of my short life, while appreciating all the minor details & brief moments of success along the journey. Most people in life take for granted the “little things” they experience or are given in their lives. I don’t! I must “appreciate” everything, because it is all a “temporary loan” to me from God, to use while I’m alive for a few short years. Once I’m gone, somebody else will use those things & I can only leave behind a legacy & any memories of me they want to keep.
I’ve done a lot of things in my life that I’d like to do again, but may not have the time, financial resources, or the physical ability to do so. I am ok with that, because my prior achievements are not a requirement for my future planned success. Keep your messages coming. Most of Society can’t understand it, but our TBI was a “bonus” to us, because it opened our closed minds to the REALITIT’S that exist in an unknown life. Those things that most of Society takes for granted, or THINKS can be controlled by human beings. THEY are wrong!
Wonderful! Raw. Frank. Honest. Thank you, Jeff.
Joyce Kysor says
I am blessed to FINALLY be a BETTER person than I was pre-TBI. I accepted my limitations, then excelled in other areas !
Hello, I am a tbi -er…. and I see you are from Maine? if i am correct… I use to live in BBH. Prior to move there my cognitive and other specialist told me the solo move would not benefit me all because they all thought I was not ready and unable to handle pressures and changes. Well I proved them wrong as to my determination to keep moving forward then to sit and wait …. I found out my limitations were some I agreed to but some were dictated by professionals. Still moving forward! and of course broadening my horizens. I finally completed and published a book .
Jeff Sebell says
Yes, I live in Maine. Good for you concerning doing what you think is right.
Lisa A. Stuckel says
YES, I am someone new after the strokes during brain surgeries in 1990. It took me several years to love the different person that I came to be, but I am so Blessed of whom I DID become! I lost so much from my medical crud, but little by little, I got 2X more back in this FAB ‘2nd Life’ that I always call it!
The 3 keys for me were:
1. The Spiritual Beings Up Above
2. Power From WITHIN
3. Search and focus on any and all of the POSITIVES in your life. (Day to day, week to week, year by year)
Good luck to ALL here!
Lisa A. Stuckel
Carol Smith-Kilgore says
Powerful story, Jeff. You deserve a lot of credit for having the insight to know your future depended on your learning about the new you. Very inspirational! Thank you!
Leslie Relle says
Thanks Jeff from one old timer survivor to another old timer survivor. I was feeling alone but your words give me comfort.