At some point during this 43 year "trip" I've spent living with a brain injury, I got fed up: too much of my mental energy was being spent getting frustrated and angry because of things other people said to me. That was the moment I decided that I should not allow my mental health or my well being be dependent on the words of others. I saw that no matter how much I tried to teach and inform others about brain injury and me, I would never be able to control what they actually thought about me ... Read On
Let’s Honor the Courage of the TBI Survivor
Some acts are obviously courageous: a person runs into a burning building and saves a life, or a bystander dives into a lake to save a drowning person. These are dramatic examples of courage and bravery, when people make spur of the moment decisions and put their own lives at risk in order to save others. There is, however, another, harder to ... Read On
Finding the Will to Keep Fighting after Brain Injury
We love those uplifting, feel good stories about survivors who have battled adversity to create a life following brain injury; who have proven doctors and doubters wrong by raising themselves from the ashes. These stories are good for the human spirit and good for the soul; handing us doses of confidence and inspiration by focusing on the best ... Read On
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TBI & Me: If I Die Today
The story of our life starts the moment we are born into this world. Our story is full of what makes us human: joy, failure, triumph, heartbreak, perseverance, love, facing obstacles and learning what it takes to live. As stories go, each story has a beginning and has an end, and we, at some point during our lives, become aware of our mortality and learn to deal with the concept of death in our own way: Some of us pretend we are indestructible and live as though we will not ... Read On
Lost My Car & Nearly Fell Into the “Brain Injury Trap”
I get a laugh when I mention to somebody that I lost my car in the parking lot and they respond with, "Oh yeah, I do that all the time." I know they are just trying to be cute and funny or to find a way to make a connection with me, but what these people don't understand is that there is nothing cute or funny about a brain injured individual having to deal with constantly forgetting, misplacing or not understanding. I'm sure many, if not all of you, understand exactly what comes with ... Read On
My Mental Balancing Act-Post Brain Injury
For the last forty three years, since my car crash and month long coma, I have essentially been performing one big balancing act. Over this time I have learned what it takes to maintain my balance on the brain injury high wire; balancing what I used to be, what I was becoming, what I thought I was and my new reality in order to build a life that works. I will be balancing for the rest of my life, balancing on a straight and narrow line so I can continue to live my life and move ... Read On
“Strategies” Are Important, but We Need Solutions
After we experience a brain injury we want answers to some important questions: when will I be my old self again, and how do I get myself back? Unfortunately, there are no answers. We learn quickly that, much to our dismay, there is no roadmap for life after brain injury. There is no schedule. There is no "approved method" for living. The best we can do is listen to doctors and therapists, as well as other survivors who have already travelled this road, hoping we can find ways to improve ... Read On